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Ultra-Violet

One Girl's Prader-Willi Story

Language EnglishEnglish
Book Paperback
Book Ultra-Violet Debbie Frisk
Libristo code: 12513406
Publishers RTC Publishing, September 2014
Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder tha... Full description
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Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.

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About the book

Full name Ultra-Violet
Language English
Binding Book - Paperback
Date of issue 2014
Number of pages 82
EAN 9781939418708
ISBN 1939418704
Libristo code 12513406
Publishers RTC Publishing
Weight 145
Dimensions 170 x 244 x 4
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